Ethnotale: Up Close and Personal

Of all our projects on health and illness, this was one of our favorites. We wanted to better understand how having acromegaly impacts the daily life of the men and women who have it. To learn, we spent time with men and women who have acromegaly throughout the U.S., and we also asked them to keep video diaries of their experiences in between our visits. We also spent time with endocrinologists throughout the U.S. to learn more about how they treat acromegaly, and we even got to go on doctor visits with some of our participants! We discovered so much about what it means to have acromegaly, from a physiological standpoint but also in terms of how it changes how those who have it relate to the world, not to mention how it can turn what we think we know about the nature of illness on its head. We are extremely grateful to our participants, each and every one, for sharing so much of their lives with us.